Giving you the insights
to take control.
There are significant challenges in fully understanding the natural history of Sickle Cell Disease or the events surrounding a Vaso-Occlusive Crisis, given the rare nature of the disorder and limited patient contacts within a healthcare setting.
Sickle Cell Disease is often considered an “invisible disease”, and patients are not always given the full understanding of their condition needed to effectively manage it in day-to-day life. Much of the burden in monitoring symptoms and disease progression falls upon patients themselves, mood or pain diaries forming a substantial source of information for clinicians.
At Project Eleven, we want to enable health providers to better understand Sickle Cell patients and learn from their experiences. We believe this is imperative in accelerating research and improving the quality of care.
SICKLE CELL DISEASE OVERVIEW
Patients diagnosed with Sickle Cell Disease globally
Of adults with Sickle Cell Disease suffer from depression
Increase in prevalence of Sickle Cell Disease worldwide by 2050
What our patients are saying.
Finally, i'm the one in the drivers seat
It feels like I am making a difference and hopefully it changes how people view Sickle Cell Disease.
I feel like I am contributing to the understanding of Sickle Cell Disease
Using my data to measure and potentially improve outcomes is really valuable for me and patients like me. Being able to potentially predict a crisis or VOC will really change things for Sickle Cell Disease patients and I am excited to be part of this programme
It’s helping me understand myself better
I have learnt more about myself, I have been tracking my moods and my activity and have seen how they link to the pain i’m feeling.
Putting you in charge.
Project Eleven wants to ensure better quality patient care and experience, through both the advancement of standards and speed of intervention. Through predictive technology integration and monitoring of the relevant vitals the goal is to provide the knowledge needed to shape the resulting treatment pathways and boost each patient’s understanding of their sickle cell disease, without the need to manually input data themselves.
Understanding of psychological wellbeing
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CONNECTS TO YOUR HEALTHCARE DOCTORS AND NURSES
Access to the latest Sickle Cell Disease research
BOOK A TELECONSULTATION WITH YOUR DOCTORS AND NURSES
Capturing a clearer picture of your health and sickle cell disease.
Emotional changes such as anxiety and low mood are common in people with sickle cell disease and tracking episodes can help seek appropriate psychological support
Disrupted sleep cycles/patterns are linked to increased pain and crisis
Low blood oxygen saturation is common in sickle cell disease, and obstructive sleep apnoea that is also highly relevant in patients with sickle cell disease
YOUR GP & HOSPITAL DATA IN ONE PLACE
Combining your health records
Low or extremely high activity levels may indicate or start a crisis, but certain exercises can help relieve pain
Fast heart rate is linked to anaemia, low blood oxygen, stress and anxiety