The Power of Remote Monitoring

The Power of Remote Monitoring

The Power of Remote Monitoring Tracking Quality of Life and Live Physiological Measures for Better Patient, Disease, and Therapeutic Understanding In the fight to ensure each new innovation is backed by real-world evidence that demonstrates their true impact and...
Managing an Ultra-Rare Disease with Eleven

Managing an Ultra-Rare Disease with Eleven

Managing an Ultra-Rare Disease with Eleven Hello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS). OHS is an X-linked recessive mitochondrial and connective tissue disorder that was previously considered a variant of Ehlers-Danlos...