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Eleven Health Awards Gala 2021 Finalist: Suki’s Story

Eleven Health Awards Gala 2021 Finalist: Suki’s Story

Suki was born in 2019 with the condition. Her journey was tougher than most, in the sense that she started experiencing crises as early as 5-6 months old. By the time she was 7 months old, she had her first blood transfusion. At 9 months, she was on the regular transfusion programme.

Eleven Health Awards Gala 2021 Finalist: Sara-Jane’s Story

Eleven Health Awards Gala 2021 Finalist: Sara-Jane’s Story

Tell us about your story – as a Sickle Cell Disease patient and advocate for the Eleven community? I have sickle cell trait. Since the age of five, I have always suffered full-blown symptoms of sickle cell. I’ve always been told that it’s very rare for carriers to suffer symptoms.

Eleven Health Awards Gala 2021 Finalist: Sara-Jane’s Story

Eleven Health Awards Gala 2021 Finalist: Sara-Jane’s Story

I was diagnosed at birth with Sickle Cell and had my first crisis at a very young age. Since then, I’ve been in and out of hospital. Through my teenage years, I sat my GCSE’s and public exams while I was in hospital as well. I’ve learned how to manage my Sickle Cell through these experiences…

Eleven Health Awards Gala 2021 Finalist: Gilde’s Story

Eleven Health Awards Gala 2021 Finalist: Gilde’s Story

It was only when I went away to uni and was forced to become independent with my care that I started asking questions to learn what SCD actually was. When I had my first crisis in uni, I realised this is actually quite a serious condition and it scared me that no one knew anything about it, not even the doctors at the hospital. They didn’t know how to treat me and I had to be my own advocate. It was my voice that was dictating my own care.