What Happens When You Join Eleven?
Fighting Loneliness this Mental Health Awareness Week
Fighting Loneliness this Mental Health Awareness WeekLoneliness affects millions of people across the UK every year, making it a poignant theme for this year’s Mental Health Awareness...
Managing an Ultra-Rare Disease with Eleven
Managing an Ultra-Rare Disease with ElevenHello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS).OHS is an X-linked recessive...
Mwape’s Story: Life with Symptomatic Sickle Cell Trait
Mwape’s Story: Life with Symptomatic Sickle Cell TraitMwape Miller is an author, artist, traveller, cook, and music lover. She is also someone with symptomatic Sickle Cell Trait...
How Patient Communities Drive Change
How Patient Communities Drive ChangeA well-informed patient is a powerful thing. When patients are knowledgeable about their health and their conditions they’re able to take an active role in their...
The Legacy of Evan Nathan Smith: Fighting For Care
The Legacy of Evan Nathan Smith: Fighting For CareWhen he was denied oxygen, Evan Nathan Smith dialled 999 from his hospital bed. Evan was in hospital after...
Keeping Mobile Through Exercise
Keeping Mobile Through ExerciseStrenuous exercise should be avoided by those with Sickle Cell disease, but this does not mean you need to stop being active...
Fighting Loneliness this Mental Health Awareness Week
Fighting Loneliness this Mental Health Awareness WeekLoneliness affects millions of people across the UK every year, making it a poignant theme for this year’s Mental Health Awareness...
Mwape’s Story: Life with Symptomatic Sickle Cell Trait
Mwape’s Story: Life with Symptomatic Sickle Cell TraitMwape Miller is an author, artist, traveller, cook, and music lover. She is also someone with symptomatic Sickle Cell Trait...
The Legacy of Evan Nathan Smith: Fighting For Care
The Legacy of Evan Nathan Smith: Fighting For CareWhen he was denied oxygen, Evan Nathan Smith dialled 999 from his hospital bed. Evan was in hospital after...
Our Member Stories | September
Our Member StoriesSEPTEMBER 2021Reia – Help in a Crisis “I’d been having a sickle cell crisis for over 2 weeks but was managing it at home. As the pain grew more...
Our Member Stories | August
Our Member StoriesAUGUST 2021Chadelle – Regaining control and improving wellbeing “My sickle cell journey has been extremely tough and it is only recently I’ve been...
Our Member Stories | July
Our Member StoriesJULY 2021Steph – Grateful for my community “I think it’s epic. On Eleven you can put down your pain score, your psychological welfare, all of that is...
Keeping Mobile Through Exercise
Keeping Mobile Through ExerciseStrenuous exercise should be avoided by those with Sickle Cell disease, but this does not mean you need to stop being active...
‘How Have You Been Since Our Last Appointment?’
‘How Have You Been Since Our Last Appointment?’When doctors ask how your symptoms have been since your last appointment it’s easy to forget what the last couple of months have actually been...
What Happens When You Join Eleven?
What Happens When You Join Eleven?The first step is receiving your smartwatch from us! This will enable you to track your sleep quality, activity levels, ECG, blood oxygen levels, heart rate and...
Managing an Ultra-Rare Disease with Eleven
Managing an Ultra-Rare Disease with ElevenHello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS).OHS is an X-linked recessive...
How Patient Communities Drive Change
How Patient Communities Drive ChangeA well-informed patient is a powerful thing. When patients are knowledgeable about their health and their conditions they’re able to take an active role in their...
Your Data is Powerful
Your Data is PowerfulThanks to Eleven’s users, we now have more information about the lives of those with Sickle Cell and Thalassemia than has ever existed.To do this,...
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